Children's Hospital, Boston

So, this isn't exactly my idea of fun, but I had to throw out a plug for Children's Hospital Boston, Blackfan St! My baby has a 'minor' medical problem. Now, by minor, I certainly don't mean that I consider it minor, but in the scheme of things it most definitely could be a lot worse. The standard of care for this condition is currently under question. The biggest problem with what she has is that she's very likely to develop infections. The standard is to administer antibiotics on a daily basis until the condition is outgrown, which could be as many as 5 years! Many docs are currently questioning this school of thought since the effectiveness hasn't been tested. Short story, Children's is participating in a national study that is examining if administering prophylaxis antibiotics are preventing anything at all.

Yesterday was our first day of the study. It was a VERY long day that involved nuclear med tests, bloodwork, urine sample, rectal swabs, blood pressure (surprisingly harder for her than I would have thought!) and a 90 minute scan....that's 90 minutes if my 8 month old doesn't move an inch during the test! They told us to expect 3-4 hours for that scan.

I just have to say, EVERYONE at Children's made this as enjoyable as possible. Each staff member that I walked by at the very least smiled at the Babe, and at me. Many of them said hello, talked to Riley, etc. Those that had to do tests were just so kind to her and tried to make it as painless as possible for her. The study coordinator was incredible, and I just couldn't be happier to have to partnership with them.

While I hope that noone needs to have specialty services for their children, if they do, try try try to get into Childrens! They are affiliated with Harvard Medical School. They just opened a new satellite clinic in Peabody at Centennial Drive. They also have a Waltham location, and a Lexington office.

Hope you and your children have a healthy day!